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Public Policy of the Brain Injury Network
Policy approved by the Board 9-12-09
Social Communities Online (Social Community and On-Line Networking Websites):
We want more transparency on social community websites. We want proper safeguards to ensure users’ profile information isn’t shared with developers or business concerns. We want sites to explicitly and fully disclose if they are “harvesting patient data”, and for what purpose. We want users to have the information they need to make decisions as to how widely they share personal information online.