Advocacy by and for People with ABI
(Acquired Brain Injury)
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The Brain Injury Network (BIN) is the first brain-injury-survivor-operated, international and USA national, Survivor of Acquired Brain Injury (ABI), nonprofit, advocacy organization. (Founded 1998.) This nonprofit organization is for and by the brain injury survivor community. We members at BIN are people with ABI in its various forms which include but are not limited to aneurysm, anoxic or hypoxic injury, brain illness, brain tumor, stroke, or traumatic brain injury (TBI).
ABI is an umbrella term that encompasses all of the acquired brain injuries. It also applies to such conditions as coma, concussion, Post Concussion Syndrome, Mild Traumatic Brain Injury (MTBI), Severe Brain Injury and the proposed TBI-related classification Post-Traumatic Brain Injury Syndrome (PTBIS). What we at BIN have in common is that we have all sustained one form of ABI or another. We are acquired brain injury survivors who have organized to advocate on behalf of our international and USA national community.
We are the first community of brain injury survivors who created and have operated an actual formalized and independent nonprofit organization. We have evolved into an organization with a global outlook. Brain injury survivors affiliated with our organization come from all parts of the world. This nonprofit organization is about survivor issues from the survivor perspective and we take exception with any pharmaceutical, rehabilitation or other business concerns that would trade on our philosophy.
The Brain Injury Network is a worldwide organization promoting ABI brain injury survivor collective advocacy, citizen action and acquired brain injury survivor human, civil and legal rights. BIN is ABI survivor led and ABI survivor operated. It is important for society at large to understand that many ABI survivors are educated, intelligent and capable of leadership in our ABI community. We are here demonstrating that fact at the Brain Injury Network. BIN is a nonprofit organization involved in advocacy; awareness; consensus building; education; human, civil, legal and disability rights issues; idea dissemination; information sharing; networking; peer support; policy; referral; social community and watchdog activities. BIN is serving and speaking on behalf of people around the world who have sustained acquired brain injuries.
We are promoting collective advocacy and self-advocacy for people with acquired brain injury and we are continuously formulating our agenda and disseminating our survivor-(consumer)-driven public policy and advocacy platform. We urge brain injury advocates and advocacy agencies to adopt our recommendations and work for laws, standards and procedures that will protect people with acquired brain injuries.
The Brain Injury Survivor Movement
Would you like to help us in spreading our messages of advocacy, human rights, awareness, hope, and encouragement for people with acquired brain injuries? Would you like to help in our community's quest to be acknowledged as productive and humanitarian members of society? Join with us. Please start by liking our Facebook pages and/or joining our Facebook peer support and advocacy groups and forums. Thank you.
An acquired brain injury is an injury to the brain, that has occurred after birth, but is not related to congenital defect or degenerative disease. Causes of ABI include (but are not limited to) hypoxia, illness, infection, stroke, substance abuse, toxic exposure, trauma, and tumor. ABI may cause temporary or permanent impairment in such areas as cognitive, emotional, metabolic, motor, perceptual motor and/or sensory brain function. (Please note our policy statement regarding this definition.)
A Call for National Standards
We are calling for USA national and international standards for college level programs that serve people with acquired brain injuries. We suggest the implementation of numerous recommendations for college level brain injury programs. Please note our sections on this topic in our Public Policy Index. These include the Mandated Reporters section, the National Standards section and the Program Recommendations section. For historical record, please click on Cautionary Tale. We also urge state governments to pass legislation that will make college personnel mandated reporters of criminal conduct against college students with acquired brain injuries and cognitive challenges.
BIN Additional Information
Historical Description: This survivor-led and operated, self-help agency, is a peer support, information and referral, watchdog, and advocacy agency serving people who have sustained acquired brain injuries (abi) from traumatic brain injury (tbi), stroke, tumor and illness. Our Board of Directors consists of persons who have sustained acquired brain injuries who wish to serve our community and speak out to protect our community. BIN operates from Sonoma County, California, USA.
Mission: The purpose of BIN is to engage in activities that promote the best interests of individuals with acquired brain injuries and assist individuals with acquired brain injuries, their families and service providers, maximize the recovery of persons with acquired brain injuries. Activities include, but are not limited to, education, emotional support and recreation for persons with acquired brain injuries; advocacy on behalf of persons with acquired brain injuries; education of the public to foster awareness about acquired brain injuries and to prevent acquired brain injuries.
Contact: Sue Hultberg, MA and JD, President and Executive Director
Address: Brain Injury Network (BIN), PO Box #9276, Santa Rosa, CA, 95405-9276
The BIN is an IRS 501(c)(3) charitable organization (ID number 68-0030611) and BIN is a nonprofit corporation registered in California, U.S.A. Donations to BIN may be tax deductible. Please consult your tax adviser. Any donations to assist BIN to continue our mission will be gratefully accepted by BIN at 707 Hahman Drive, #9276, Santa Rosa, California, 95405-9276.