• About Us
  • Brain Injury Network (BIN)
  • Abuse, Expoitation, Victimization
  • Academic Attribution
  • Blast Exposure Brain Injury
  • Ban Football
  • Brain Injury Survivor Priorities
  • Brain Injury Advocacy by and for People
  • Brain Injury Advocates Book
  • Brain Injury Network Forums
  • Brain Injury Survivor Identifiers
  • Brain Injury Survivor Movement
  • By and For the Brain Injury Survivors
  • California Dept. of Rehabilitation
  • California or Local
  • Calif. Senate Health Committee Testimony
  • Cautionary Tale
  • College Disability Programs
  • Contact Us
  • DOR CA TBI
  • Easy Picture Links
  • Easy Text Version
  • Health Care Reform
  • Hospital Trauma Centers
  • How You Can Help
  • Human Rights of People With Brain Injury
  • International Standards
  • Laws and Legislation
  • Lawyers and Attorneys
  • LInk To Us
  • LINKS
  • Mandated Reporters
  • mTBI and Neuroimaging
  • National Standards
  • Online Community
  • Please Donate to the BIN
  • Policy Advocacy ABI Forum
  • Post-Acute Sequelae of Covid-19 (PASC)
  • Postsecondary BI Programs
  • Postsecondary Protocols
  • Post-TBI Syndrome Dear Medical Community
  • Privacy Policy
  • Protect Your Privacy
  • Public Policy
  • Public Policy in Chronological Order
  • Public Policy Index
    • Best Practice Guidelines
    • Bicycle Helmet Law
    • Brain Injury Community
    • Brain Injury and Parental Rights
    • Building Code Standards
    • Classification of TBI
    • Clinical Research
    • Cognitive Retraining
    • Community Reintegration
    • Comprehensive Health Reform
    • Concussion and Sports
    • Conflict of Interest in Medical Research
    • Counselor Training
    • Crime
    • Department of Mental Health
    • Devicing While Driving
    • Disability Rights and Issues
    • Disclosures, Advocates
    • Disclosures, Medical Providers
    • Disclosures, Researchers
    • Disclosures, Web Sites
    • Doctor Education
    • Driving While Devicing
    • Drug Companies
    • Empowerment, Patient
    • Exposing Brain Injury Survivors' Identie
    • Feeding Tube
    • Financial Institutions
    • Fluorescent Lighting Mandate Waiver
    • Food and Water
    • Funding Priorities for Survivors
    • Gold Standard Research Studies
    • Helmet Laws
    • High School Graduation
    • Hospital Privacy and Consent
    • Hospital Settings and Patients
    • Hospital Trauma Centers in the USA
    • Human Research Guidelines
    • Identification as People
    • Law-Abiding Survivors
    • Incarcerated Criminals with ABI
    • Law Enforcement
    • Laws and Recommendation
    • Least Restrictive Living Environment
    • Living Environments
    • Local and County Services
    • Locked Facilities
    • Mandated Medical Review
    • Mandated Reporter Law
    • Medical Device Makers
    • Mental Illness
    • National Centers: Costly Duplication
    • Nursing Home Placements
    • Nutrition and Hydration
    • Online Recruitment of Patients
    • Patient Recruitment to Medical Studies
    • Organizations or Providers Offering Mone
    • Parental Rights and Brain Injury
    • Patient Data Harvesting
    • Patient Empowerment
    • Persistent Vegetative State (PVS)
    • Persistent Wakeful but Unaware State
    • Physician Disclosures
    • Political Correctness
    • Political Sensitivity
    • Post-Acute Medical Environments
    • PostConcussion Syndrome
    • PCS is Physiological in Origin
    • Post-Secondary Education
    • Post-Secondary Programs
    • Privacy Online
    • Privacy Settings on Web Sites
    • Profiting from Exposing Our Identities
    • Psychologist and Counselor Training
    • Psychotropic Drugs, Use of
    • PTSD (Post Traumatic Stress Disorder)
    • Post-TBI Syndrome-Proposal
    • QEEG
    • Raising Money to Promote Med. Research
    • Recruitment Methodology
    • Removal of Life Support
    • Research Studies Full Disclosure
    • School Age Children with ABI
    • Sports or Athletics Activities
    • Skiing and Helmets
    • Social Community On-Line Networking
    • Social Media Recruitment
    • Sports Medical Review
    • Stakeholders, Third Party
    • State Brain Injury Survivor Councils
    • Stigma and Brain Injury
    • Stigma, Marginalization, Stereotypical
    • Strokes are not TBIs
    • Subclassification Hierarchy of ABI
    • Support Group Facilitation
    • Survivor Advocacy
    • Survivor Advocates
    • Survivor Identity, Exposure of
    • Survivor Community Priorities
    • Survivor Stories in Media
    • TBI is a Subset of ABI
    • Terminology
    • The Term "Survivor"
    • Universal Health Care
    • Veterans, US Armed Forces
    • Victimization
  • Search This Site or the Net
  • Services Prioritization
  • Survivor Advisory Council
  • Survivors As Stakeholders
  • The Survivors' Point of View
    • A Chronic Disease
    • A Cure for Brain Injury?
    • A Stroke is Not a TBI
    • Advocates: Conflicts of Interest
    • Brain Injury Awareness
    • Brain Injury Support Groups
    • Can We Be "Trained"?
    • Definitions of ABI and TBI
    • Facebook Is Not Safe
    • 2009 Independence Day Message
    • Internet Providers Share Your Info
    • Medical Designations
    • Our Own Advocacy
    • Politically Correct Terminology
    • Post-TBi Syndrome (PTBIS)
    • Research, Clinical Trials, Studies and P
    • SABI Brain Injury Advocacy Forum
    • SABI
    • Survivor Organizations
    • Social Communities
    • Use of the Term "Survivor"
    • Why We Need Collective Advocacy
  • What We Survivors Need
  • Who Represents Us?
  • Worldwide Brain Injury Community Awarene
  • Blank 2
Donate
DONATE
Public Policy of the Brain Injury Network
Policy approved by the Board 6-12-10

Profiting from Exposing Brain Injury Survivors' Identities:

We understand that there are times when particular case scenarios of people with brain injuries will be discussed in medical journal articles, lectures, books, etc. However, we object strongly to professionals identifying particular survivors by name or by other identifying private information in journals, lectures and books. If it is possible to ascertain who exactly the research subject was, the professional has gone too far. In the old days, the actual identity of research subjects was guarded by the professionals. For example, the identity of the famous neurological patient “H. M.” was guarded expertly by his doctors for over 50 years until after his death. This is the right way for medical professionals and researchers to go about things.
There is now a very disturbing trend where certain professionals are publishing too much information about their research subjects in articles and books. It is enough that in the interest of science we find out the most intimate details about these folks. No one should know who these people actually are. There is no excuse for any professional to share such detailed identifying information. It is a breach of their duty as professionals to protect the best interests of their study subjects who have brain injuries. It is too easy to take advantage of some people with brain injuries, and get them to sign disclosure consent forms. Don’t expose these folks.
Protect our dignity. Guard our privacy.
Public Policy Index of Topics
ABI/TBI Definitions, About BIN, Ban Dangerous Sports,Brain Injury Advocacy, Brain Injury Forums,Brain Injury Names, By and or Brain Injury Survivors, California Area BIN, Cautionary Tale, Classification, Contact Us, Chronic Disease?, Concussions and Football, Distribution List, Easy Version, Global Issues,Health Care Reform, Home, How You Can Help, Human, Legal and Civil Rights, Independence, International Standards, Laws and Legislation, Links, Mandated Reporters, National Standards, News, Online Community, Please Donate, Postsecondary Program Protocols, Post-TBI Syndrome, Privacy Policy, Protect Your Privacy Public Policy, Public Policy Index, Research/Clinical Trials/Studies, SABI Advocacy Forum, SEARCH, Shop OnLine and Help BIN, The Survivor Movement, The Survivors' Viewpoint,Terminology, Who Really Represents Us, Who We Are,Worldwide Brain Injury Community,Your Privacy Settings on the Internet
© Copyright 1998-2023. Brain Injury Network
All rights reserved.

We use cookies to enable essential functionality on our website, and analyze website traffic. By clicking Accept you consent to our use of cookies. Read about how we use cookies.

Your Cookie Settings

We use cookies to enable essential functionality on our website, and analyze website traffic. Read about how we use cookies.

Cookie Categories
Essential

These cookies are strictly necessary to provide you with services available through our websites. You cannot refuse these cookies without impacting how our websites function. You can block or delete them by changing your browser settings, as described under the heading "Managing cookies" in the Privacy and Cookies Policy.

Analytics

These cookies collect information that is used in aggregate form to help us understand how our websites are being used or how effective our marketing campaigns are.