Advocacy by and for People with ABI (Acquired Brain Injury)
Public Policy of the Brain Injury Network Policy dated 9-12-09
Recruitment Methodology Online or through Social Media: We support full disclosure and transparency regarding patient recruitments for clinical trials and other research from patient advocacy organizations and departments, social communities, surveys and web sites. Individuals with brain injury are entitled to clear, honest, straight forward interaction and collaboration with researchers. Even the casual visitor to a web site has the right to know if he or she is being monitored and his or her private information harvested for the purpose of research or data compilation. As potential research participants we are entitled to know if we are being recruited, or targeted as potential study subjects (via online survey moneys, or on Internet social communities, etc.) by media device manufacturers, medical professional associations, medical center and university researchers, patient advocacy organizations, pharmaceutical concerns, the government, or by third party patient recruitment businesses.