Advocacy by and for People with ABI (Acquired Brain Injury)
Public Policy of Brain Injury Network Policy dated 9-12-09 Patient Recruitment and Covert Devices Online to Recruit Patients to Medical Research Studies:We support transparent, straightforward, overt, and aboveboard solicitations for potential patient volunteers for clinical research. We support recruitment that clearly expresses the intent of the solicitation. We frown on tricky research monkey surveys, etc., online that do not disclose that the main reason for the survey is to seek out and locate potential patient volunteers for medical studies. We especially object to the utilization of survey moneys online by third party, for-profit, recruitment companies whose true purpose is to find and secure potential patient volunteers for medical research. We object if the purpose of said survey is not clearly enunciated and if subtle covert strategies are employed to attract volunteers into studies.We expect survey solicitations to be presented without evasion. We expect survey solicitations to clearly spell out their true purpose.