Advocacy by and for People with ABI (Acquired Brain Injury)
Public Policy of the Brain Injury Network Policy dated 9-12-09
Conflict of Interest in Medical Research: We object when corporate sponsors (pharmaceutical companies, biotechnology companies, etc.) of medical research contribute to clinical trial design or are allowed to access trial data or are permitted to interpret trial results. We object if they are allowed to review studies prior to publication in journals or are allowed to withhold publication of study findings from medical journals. We support “Good clinical practice.” Both positive and negative results of studies must be reported. There must be complete transparency as to whom is conducting research. We object to the stealth collection by third party patient recruitment companies of personal health information in on-line social media, especially on so-called patient sites. When the purpose of the social media site or on-line survey document is to attract patients to clinical trials that should be transparent.