The Brain Injury Network is the first survivor operated international and USA national Survivor of Acquired Brain Injury (ABI) non-profit advocacy organization. We are people with abi in its various forms which include: traumatic brain injury (tbi), stroke, brain tumor, brain illness, coma, post concussion syndrome and anoxic or hypoxic injury. What we all have in common is that we have all sustained acquired brain injuries. We are survivors of acquired brain injury who have organized to advocate on behalf of our international and USA national community. (We were founded in 1998.)
Our Mission: We are promoting collective advocacy and self-advocacy for people with acquired brain injury and we are continuously formulating our agenda and disseminating our survivor (consumer) driven public policy platform.
Definition of Acquired Brain Injury (ABI): An acquired brain injury is an injury to the brain, that has occurred after birth, but is not related to congenital defect or degenerative disease. Causes of ABI include (but are not limited to) hypoxia, illness, infection, stroke, substance abuse, toxic exposure, trauma, and tumor. ABI may cause temporary or permanent impairment in such areas as cognitive, emotional, metabolic, motor, perceptual motor and/or sensory brain function. (Please note our policy statement regarding this definition.)
Search Our Sister Site, the 5,000 link Brain Injury Directory. It is a little slow to load, but it works. Enter your search query in the search box at the top.
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This website was most recently updated on 2-8-10.
A Call for National Standards
The Brain Injury Network, an organization operated for and by survivors of acquired brain injury, is calling for USA national and international standards for college level programs that serve people with acquired brain injuries. We suggest the implementation of numerous recommendations for college level brain injury programs. We also urge state governments to pass legislation that will make college personnel mandated reporters of criminal conduct against college students with acquired brain injuries and cognitive challenges. Please note the categories to the left. There are portals to specific sections regarding the public policy objectives of the Brain Injury Network under the topics "Public Policy Index", "National Standards", "Mandated Reporters" and "Program Recommendations". For a historical record, please click on "Cautionary Tale". We urge brain injury advocates and advocacy agencies to adopt our recommendations and work for laws, standards and procedures that will protect people with acquired brain injuries.
BIN Additional Information
Description: This survivor-led and operated, self-help agency, is a peer support, information and referral, watchdog, and advocacy agency serving people who have sustained acquired brain injuries (abi) from traumatic brain injury (tbi), stroke, tumor and illness. Our Board of Directors consists of persons who have sustained acquired brain injuries who wish to serve our community and speak out to protect our community. BIN (formerly nicknamed BINSCI) operates from Sonoma County, California, USA.
Mission: The purpose of BIN is to engage in activities that promote the best interests of individuals with acquired brain injuries and assist individuals with acquired brain injuries, their families and service providers, maximize the recovery of persons with acquired brain injuries. Activities include, but are not limited to, education, emotional support and recreation for persons with acquired brain injuries; advocacy on behalf of persons with acquired brain injuries; education of the public to foster awareness about acquired brain injuries and to prevent acquired brain injuries.
Contact: Sue Hultberg, MA and JD, Executive Director
Telephone: (707) 544-4323
Address: BIN PO Box 9217 Santa Rosa, Ca. 95405-1217
BIN Advocacy: People with brain injuries all over this entire globe need advocacy. Therefore, our advocacy interests extend world-wide. We must attempt to exert influence, in association and in cooperation with other survivors, world-wide. There are international, national, state and local concerns. Our primary focus, though, is in the United States of America, and in California, USA.
BIN "Local" Service Area: Please see the California or Local section of the web site.
The BIN is an IRS 501(c)(3) charitable organization and BIN is a nonprofit corporation registered in California, U.S.A. Donations to BIN may be tax deductible. Please consult your tax adviser. Any donations to assist BIN to continue our mission will be gratefully accepted by BIN at PO Box 9217, Santa Rosa, California, 95405.
